About us
From one family’s experience, support for the community.
We created Matteo Center so families of children with rare diseases can more easily find guidance, services that work together, and a community that understands.
Our story
We know what it is like to seek help in many places and connect all the answers yourself.
In Matteo’s family, every assessment, therapy, and decision brought new questions. We learned how much energy it takes to move between specialists and how important it is for someone to see the whole situation, not only one part of it.
That is where the association began: with the wish to help other families find guidance, support for their child, and practical help sooner.
We stand beside the child and the people who care for them, not only a diagnosis.
Children and adolescents
Assessment, intervention, and activities adapted to how each child learns, communicates, and develops.
Parents and caregivers
Guidance and practical support for decisions about therapy, school, services, and family life.
Young adults
Continued support for autonomy, life skills, relationships, and participation in the community.
How we choose to work
Every child has their own pace. Every family has its own reality.
We listen before we suggest, build support around real needs, and keep the child’s dignity at the heart of every decision.
The child before the diagnosis
We see the person, their pace, joys, and needs—not only the name of a condition.
Support that connects
We bring family, specialists, and resources together so each step can support the next.
Respect and participation
Children and their families deserve to be heard, informed, and involved in decisions that affect them.